The ALS Emergency Treatment Fund

Hope for ALS sufferers

ALS patients are routinely told there is no treatment
available to them until new drugs are approved.
For many who measure their lifetimes in months,
that’s just not good enough.

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Treatment Access for TODAY’S ALS Patients

We don’t just WANT earlier treatment access.
We are leading the work to make it a reality
for patients who cannot wait.

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Partnership

We bring the funding and the in-house expertise required to
conduct expanded access treatment programs (EAP),
in partnership with commercial drug sponsors and ALS clinics.
The Result: Earlier treatment options for more ALS patients.

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The ALS Emergency Treatment Fund was launched in 2012 to sponsor medically appropriate
treatment programs for investigational ALS drugs. The goal is to provide current dying patients
with immediate access to potentially life-extending drugs while those drugs continue the long
process toward standard marketing approval.