Medicare shushes ALS sufferers

Boston Herald - 31 minutes ago
CMS said in a statement that the...

Wonkbook: The troubling state of labor

Washington Post (blog) - 13 hours ago
Wonkbook's Chart of the Day:...

Medicare statement on ALS speech-generating devices

Washington Post - 1 day ago
A spokesman for the Centers for...

Ice Bucket Challenge: Cold truth is that some great nonprofits get left out

San Jose Mercury News - 4 days ago
One project I helped start, the...

Wonkbook: The growing US fight against Ebola

Washington Post (blog) - 5 days ago
... from the Great Recession....

Contraception, Obamacare subsidies and ice buckets: Health care's summer to ...

Washington Post (blog) - 5 days ago
The viral phenomenon of the Ice...

Triton Minerals Limited (ASX:TON) High Grade Graphite Zone Averaging 19.6 ...

Yahoo!7 News - 1 day ago
The Company has encountered some...

Chicago Fire Department Expands Simulation Training Center Goals - 4 days ago
Since the summer of 2012, the STC...

Bush 43 Does ALS Ice Bucket Challenge

Daily Beast - 2 weeks ago
As ISIS advanced, besieging...

Volker and Brattberg: NATO must stand up to Putin

Opelika Auburn News - 4 days ago
NATO has increased air policing...

News via Google. See more news matching 'als expanded access'


Expanded Access

Bringing Research and Patients Together

Our Expanded Access platform is meant to do two things:

  1. Empower patients with access to new treatments that are in clinical research.
  2. Empower further research with clinical data from those patients.

For someone with a quick-killer disease, participating in clinical research may be the only way to access a new medicine that might help him live longer.  He may be willing to accept some uncertainty, considering the alternative.  So for patients, there’s a lot of overlap between treatment exploration and research.

But what about patients who cannot get into clinical trials?  Can they still take part in research and explore investigational treatment?

Yes, they can, but only through what are called Expanded Access programs (EAPs).  These are meant to include a much broader group of patients than traditional clinical trials, sometimes exclusively those patients who don’t meet clinical trial enrollment criteria or who otherwise cannot get into trials.

ALS-ETF is bringing a new kind of Expanded Access to the ALS community, to make a groundbreaking impact in the treatment landscape for patients as well as the research that’s powered by patient data.

Learn more about Expanded Access programs here.

Learn more about our research goals here.