We are focused on one thing: Gaining emergency treatment options for ALS patients through expanded access programs (EAP).
Below is our mission statement as appears in our articles of incorporation:
The purpose of the corporation is to engage in lawful acts of activity for which corporations may be organized under the General Corporation Law of Delaware.
This corporation shall be a nonprofit corporation and is organized and operated exclusively for charitable purposes within the meaning of Section 501(c)(3) of the Internal Revenue Code.
3a)The specific purpose for which this corporation is formed is to provide near-term treatment options to gravely ill sufferers of amyotrophic lateral sclerosis (ALS), an immediately life threatening disease for which no FDA approved treatment is regarded as effective at changing patient outcomes. The ALS Emergency Treatment Fund, under license from pharmaceutical companies and with authorization from FDA, conducts Expanded Access treatment programs (either on its own or in partnership with other parties) for products that are currently in ALS clinical development, for those patients whose physicians determine that the use of such investigational products is medically appropriate.
3b)The assets of the corporation are dedicated to the charitable purpose described in section 3a above. No part of the net income or assets of the corporation shall ever inure to the benefit of any director, officer, or member thereof or to the benefit of any private person.
3c)Notwithstanding any other provision of these articles, the corporation shall not carry on any other activities not permitted to be carried on (1) by a corporation exempt from federal income tax under Section 501(c)(3) of the Internal Revenue Code or (2) by a corporation, contributions to which are deductible under Section 170(c)(2) of the Internal Revenue Code.
3d)No substantial part of the activities of this corporation shall consist of carrying on propaganda, or otherwise attempting to influence legislation, and the corporation shall not participate or intervene in any political campaign (including the publishing or distribution of statements) on behalf of, or in opposition to, any candidate for public office.
3e)Upon dissolution of the corporation, its assets remaining after payment of, or provision for payment of, all debts and liabilities of this corporation, shall be distributed to one or more exempt purposes within the meaning of Section 501(c)(3) of the Internal Revenue Code (or the corresponding section of any future federal tax code), or shall be distributed to the federal government, or to state or local government, for a public purpose.