We Are You

The founders and volunteers of ALS-ETF all have a deep connection to ALS.

We think that this commitment, combined with the resources and in-house expertise we have assembled, enables us to do extraordinary things.

Our compass is the same one guiding all PALS and their loved ones who search for better patient outcomes.

This page is for you. We want to hear and share your stories of hope and determination.

Please send them to us at info@alsetf.org and let us know if we can tell your story on our website.

Thanks from the ALS-ETF team!

Patient Stories

1.  Do It Yourself Medicine
Our own Director of Research, Eric Valor, is featured for a second time in The Scientist magazine for the unofficial Extended Access Program (EAP) he created to follow the NP001 Phase 2 trial. This article is a great discussion of the reasons why EAPs are needed and the hurdles in thinking that we need to overcome.